Development of the Portuguese Version of the Celiac Disease Questionnaire

Authors

  • Catarina Lobão Escola Superior de Saúde de Leiria
  • Rui Gonçalves Escola Superior de Enfermagem de Coimbra
  • Baltazar Ricardo Monteiro Escola Superior de Saúde de Leiria

DOI:

https://doi.org/10.37467/gka-revsocial.v2.1229

Keywords:

Health-Related Quality Of Life, Adult Celiac Patient

Abstract

Celiac disease is characterized as a permanent and chronic intolerance to the gluten ingestion. The only effective treatment is the lifelong gluten-free diet, which implies radical changes in the patient’s life and eating habits with a constant challenge and potential shifts in their health-related quality of life. The health-related quality of life occupies an important place as a research subject in different areas of human activity. However we do not found in the literature specific instruments adapted to the Portuguese reality that could measure the health-related quality of life in celiac patients. Then our goal is to develop the Portuguese version of the Celiac Disease Questionnaire - CDQ (developed by Dr. Winfried Häuser team in 2007), which may contribute to the identification of factors that influence the adult celiac patients health-related quality of life. We carried out the translation, cultural and functional equivalence of measures with a preliminary study. Subsequently we applied the CDQ to 231 celiac patients and proceeded with a component analysis and reliability. As in the original version, the analysis of the Portuguese version suggests the existence of a four dimensions model with a KMO coefficient of 0.897. Nevertheless, we obtained a different item factor loading in each dimension: emotional experience, social participation, fears and concerns, gastrointestinal symptoms. For each dimension the Cronbach's α ranged from 0.71 to 0.89 and an overall value of 0.91. The Portuguese version of the CDC proved to be a specific instrument for health-related quality of life assessment in adult celiac patients.

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Author Biographies

Catarina Lobão, Escola Superior de Saúde de Leiria

Professor de Enfermagem da Faculdade de Ciências da Saúde em Instituto Politécnico de Leiria e pesquisador da Unidade de Pesquisa da Saúde (UIS), Escola de Ciências da Saúde de Leiria.

Rui Gonçalves, Escola Superior de Enfermagem de Coimbra

Professor de Enfermagem da Escola de Enfermagem de Coimbra e investigador na Unidade de Investigação em Ciências da Saúde: Enfermagem (UICISA-E) realizou na Escola Superior de Enfermagem de Coimbra.

Baltazar Ricardo Monteiro, Escola Superior de Saúde de Leiria

Professor de Enfermagem da Faculdade de Ciências da Saúde em Instituto Politécnico de Leiria (Portugal) e pesquisador da Unidade de Pesquisa em Saúde (UIS), Escola de Ciências da Saúde de Leiria.

References

Fernandes, H. M. (2005). “Análise factorial confirmatória do IMAAD numa população adulta”. Psychologic a, 38 , pp. 307-320.

Häuser, W., Gold, J., Stallmach, A., Caspary, W. F., & Stein, J. (2007). “Development an validation of the Celiac Disease Questionnaire (CDQ), a disease-especific health-related quality of life measure for adults patients with Celiac disease”. J. Clin. Gastroenterl., 41, pp. 157-166. DOI: https://doi.org/10.1097/01.mcg.0000225516.05666.4e

International Test Commission (2010). International Test Commission Guidelines for Translating and Adapting Tests . [http://www.intestcom.org/upload/sitefiles/40.pdf]

Kotze, L. M. (2006). “Doença celíaca”. JBG - J. Bras. Gastroenterol., 6 (1), pp. 23-34.

Lobão, C. A., Gonçalves, R. F., Monteiro, B. R. & Castro, F. V. (2010). “Qualidade de Vida da pessoa celíaca adulta”. Internacional Journal of Developemental and Educational Psycology INFAD Revista de Psicología , pp. 479-485.

Machado, A. S., Teixeira, A. V., Cardoso, H., Cruz, D., Paiva, M. E. & Tavarela-Veloso, F. (2006). “Doença Celíaca no adulto: a propósito de um caso clíncico”. GE – J. Port. Gastrenterol., 13, pp. 139-143.

Maroco, J. (2007). Análise Estatistica - com utilização do SPSS. Lisboa: Sílabo.

Moreira, V. F. & Román, A. L. (2005). “Enfermedad celiaca”. Rev. Esp. Enferm. Dig., 97 (9), p. 672. DOI: https://doi.org/10.4321/S1130-01082005000900009

Nobre, S. R., Silva, T. & Cabral, J. E. (2007). “Doença celiaca revisitada”. GE – Jornal Português de Gastrenterologia, 14, pp. 184-193.

Pedro, N., Lopes, S., Szantho, A., Costa, Á. & J. J., Moura (2009). “Doença Celíaca - revisão de conceitos e novos desenvolvimentos”. Revista da Sociedade Portuguesa de Medicina Interna, 16(1), pp. 62-65.

Pestana, J. P., Estevens, D. & Conboy, J. (2007). O papel da espiritualidade na qualidade de vida do doente oncológico em quimioterapia. Obtido em Julho de 2011, de http://www.psicologia.pt/artigos/textos/A0391.pdf.

Pestana, M. H., & Gageiro, J. N. (2005). Análise de Dados para Ciências Sociais: a complementaridade do SPSS. Lisboa: Sílabo.

Rodrigo, L. (2006). “Celiac Disease”. World J. Gastroenterol. 12(41), pp. 6585-6593. DOI: https://doi.org/10.3748/wjg.v12.i41.6585

Samões, A. R. (2010). Doença celíaca no Adulto . Tese de Mestrado do curso de Medicina da Faculdade de Medicina do Porto, Portugal.

Silva, T. S. & Furlanetto, T. W. (2010). “Diagnóstico de doença celíaca em adultos”. Rev. Assoc. Med. Bras. 56(1), pp. 122-126. DOI: https://doi.org/10.1590/S0104-42302010000100027

Viana, H. B. & Madruga, V. A. (2008). Directrizes para adaptação cultural de escalas psicométricas. Obtido em Março de 2011, de http://www.efdeportes.com.

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Published

06-03-2013

How to Cite

Lobão, C., Gonçalves, R., & Monteiro, B. R. (2013). Development of the Portuguese Version of the Celiac Disease Questionnaire. SOCIAL REVIEW. International Social Sciences Review Revista Internacional De Ciencias Sociales, 2(1). https://doi.org/10.37467/gka-revsocial.v2.1229

Issue

Vol. 2 No. 1 (2013)

Section

Research articles

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